This morning, on Wednesday the 6th of May, my wife Jessica and I said goodbye to our daughter Rebecca as she took her last breaths and died in our arms. After 14 years of struggle, adventure, and perseverance, our little girl had exhausted the flawed vessel that had always so poorly contained her incredible spirit.
Having evaded its advances several times before, Rebecca was never one to make death’s job easy. Her last months were difficult, as she stubbornly held on to life and consciousness, with fiercely defiant, open eyes and a refusal to give up, pulling air into lungs that were filling with fluid, through the narrow opening of a throat pinched tight. Rebecca had stopped tolerating food and water on Monday, but even when we were sure she had only hours remaining, our girl continued to breathe. We stayed up with her for most of the night, ready for every breath to be her last, but she dragged herself through to one more sunrise before her body gave in and she finally gave that scythe-wielding son of a bitch his singular win after so many times of giving him only a middle finger and skipping away.
Rebecca lived 14 years of full and exuberant life, in defiance of the fact that her physical burdens and limitations were beyond what most of us will ever have to imagine. We were lucky to have been charged with the care of such an incredible being. She made us better than we ever could have been without her.
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